the Spring of 2017, we announced the exciting news that our proposal Connecting
the Dots for Family Caregivers was selected to be part of The Change
Foundation’s Changing CARE
initiative. As one of only four proposals chosen across the province, we’re excited to be
working closely with The Change Foundation and six of our local health care
providers to improve the family caregiver experience in Huron Perth.
is Connecting the Dots for Family Caregivers About?
know being a family caregiver can be rewarding and fulfilling but it can also
be challenging and a significant source of stress and anxiety. Connecting the
Dots for Family Caregivers will bring partnering organizations together to listen
to, learn from and act with family caregivers and health care providers to
co-create supports, programs, and resources that address the needs of family
caregivers and ensures they feel valued, respected, engaged and supported in
their important role.
are the Health Care Partners Involved in Connecting the Dots for Family
are six partnering organizations: Huron Perth Healthcare Alliance (HPHA) (Lead
Organization); The North Perth Family Health Team (NPFHT); STAR Family Health
Team (STAR FHT); One Care Home and Community Support Services (One Care), the
Southwest LHIN (SWLHIN), and Alzheimer’s Society of Perth
we are committed to improving the Family Caregiver experience as they support
loved ones transitioning between health care providers.
is this Initiative Being Funded?
Connecting the Dots for Family Caregivers is being
funded by The Change Foundation (TCF) as part of their Changing CARE
initiative. TCF is an independent health care think-tank that works to inform
positive change in Ontario’s health care system. As part of their strategic
plan, the organization is focused on improving the experience for Family
Caregivers in Ontario’s health and community care systems.
is the Timeline for this Work?
the Dots for Family Caregivers is a multi-year project which includes four
1 - Planning (March - August 2017)
this first year, the collaborative is focused on building the infrastructure to
support the initiative, followed by Family Caregiver engagement. Engagement
means reaching out to Family Caregivers to better understand their experience
and what they need to feel supported in their role. We will connect with Family Caregivers using
public forums, coffee chats and through one-on-one conversations.
Phase 2A -
Developing the Framework (August to September 2017)
Results of Phase 1
will enable the collaborative to develop a detailed project framework in
partnership with family caregivers and clinicians who will be represented
within working groups/project teams.
Phase 2B -
Experience Based Co-Design (October 2017 - March 2018)
Create/recruit teams/working groups to
co-design services and/or care pathways with staff and family caregivers.
Phase 3 -
Pilot services and/or improvements with partner
Phase 4 - Rollout (Year 3)
Huron and Perth
do we mean by Family Caregiver?
A family caregiver is defined as family,
friends, and neighbours who provide personal, social, psychological and
physical support, assistance and care, without pay, for family members and
friends in need. This support can be provided for any period of time.
*adapted from the Change Foundation
What is Experience-Based Co-Design?
co-design is an approach that enables staff and caregivers to co-design
services and/or improvements, together in partnership. It involves gathering
experiences from patients and staff through in-depth interviewing, observations
and group discussions, identifying key ‘touch
significant points) and assigning positive or negative feelings. Staff and
family caregivers are then brought together to explore the findings and to work
in small groups to identify and implement activities that will improve the
service or the care pathway.
on definition provided by Point of Care Foundation
Does Success Look Like?
the Dots for Family Caregivers aims to improve
the quality of care and experience for caregivers, patients and health care
Health care providers will be supported to:
with family caregivers as an essential part of the care team
the needs of family caregivers to ensure they are understood and met throughout
the care journey
the value and contribution family caregivers make in the care of their loved
family caregivers about the available resources and supports to ease their
caring; educate myself, as a care provider, to engage with and learn from
stress and anxiety
sense of feeling overwhelmed/isolated
risk of family caregiver “burnout”
sense of worth
sense of self and identity
self-care (sleep, nutrition, exercise, socialization)
state of physical, emotional and mental health
How Can I Learn More?
the project on Twitter @CC_Connecting
for regular project updates which will be shared across each of the partnering
you have questions about Connecting the Dots for Family Caregivers, speak to
your Manager or contact Jennifer Hubbard at 519 527 1650 ext. 4219 or firstname.lastname@example.org.
more information on the Change Foundation click here.